Monday, 5 January 2015

Wish updates

Wish updates

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1) I know of 3 people who signed up through My 30 Wishes and it has raised awareness of donation and the importance of joining as well as the desperate need for donors from ethnic minorities. It was featured on BBC Surrey radio and included an interview with a man who donated bone marrow to save someone's life and an interview with someone from the Anthony Nolan Trust. Don't forget you can sign up as a donor with Delete Blood Cancer up until your 55th birthday.

2) I was rather ambitious with the number of views I had hoped for but more people have now seen the video (especially after Fearne Cotton asked her followers to watch it) but no doubt it had been seen many more times after a version of the video was on Russell Howrds good news a few years back (and is still being repeated!). You can see the Russell version here

3) Thank you to everyone who has donated, my online total reached £500 by the end of my birthday so thank you to everyone who has donated. I've had around £100 of donations offline too so that's £600. Diane from Finest of Norfolk (http://www.finestofnorfolk.co.uk) is planning a fundraiser in the spring and Francesca (http://francesca-wales.co.uk) has kindly offered to do an afternoon of mini massages or manicures in return for donations to Brenda's Beach Chair. Donations can still be made on my Go Fund Me page
Hopefully next year the beach will be accessible for any disabled visitor

4) Quite a few people took on the challenge of sending 30 pieces of snail mail, Photobucket Pictures, Images and Photos
Here is Lewis with a card he was sent from the challenge
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5) My flower and balloon wish got off to a great start with BBC Surrey handing out flowers to 12 people which were donated by Flowers by Rosemary. One bedridden young adult in a nursing home arranged a balloon for another resident, 2 people brought flowers for people they wouldn't normally of, a grandmother gave flowers to her young granddaughter and someone from the M.E forum Foggy Friends received a balloon which cheered her up a lot. A couple of other people have said they plan to give Christmas flowers. Kim runs a card shop and gave out flowers and a balloon to customers who seemed in need of a smile, an elderly lady burst into tears as she had never been given flowers before (not even from her husband). I was very surprised when a huge and beautiful bouquet of flowers arrived for me from Steve at Flowers by Rosemary, I was actually speechless which is a complete rarity! Here is a pic but it doesn't do the flowers justice
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6) This one can't really be put into numbers as most who have done a RAOK did them regularly anyway but it's been nice hearing what you've done and hopefully someone new has done one. I was actually on the receiving end of a RAOK last week when Cam from BBC Surrey turned up with an advent calendar which was lovely and we talked about different ideas for RAOKs for Weds breakfast show. Cam asked me what has been the most touching response or my favourite one, it was tough to choose but someone arranged for a balloon to be given to another resident in the nursing home she is in. This is a lovely thing for anyone to do but she is extremely ill herself, is bedridden and can only whisper a few words a day- yet she used those few words to make someone's day. I also thought Kim's idea was brilliant, she made Keyrings with jingle bells on and gave them to her elderly customers with instructions to attach it to their person to help detect pickpockets.

7) Watching Voices from the Shadows has only recently been able to be done online for free. It actually is one of the most important wishes to me and ideally my wish would be for 30 people to watch it and also to find 30 new health professionals to watch it (I've been looked after by doctors,nurses and carers who have watched it but this was pre 30 wishes).
So far 10/30 people and 0/30 medical professionals have seen of. It's free to watch online until the end of the year, please watch!

8) Thank you to those who have ordered some crafting items off my Amazon wish list for Burrswood hospital. There are lots of items left which can be seen here http://www.amazon.co.uk/registry/wishlist/CQ69PHM7PBMX).
On the activity volunteering side Rhian saw my post and decided to ring her local nursing home to ask if she could play her flute to the residents. She's not played for years and has a seriously illness/disability herself as well as being a Mum to 2 little ones. Both the residents and Rhian had a wonderful time and she is returning to play carols at Christmas. I will do a blog post about Rhian soon.

9) Lots of people have told me about sunsets they have seen in the past and sent me lovely photos.

10) Thank you to everyone who downloaded Spread the Hope, over 30 of you did :)

11) 1771 people now 'Know the Glow' and as I'm leaving the blog up hopefully more people will come across the post (please tell all your friends). Sadly 1 in every 500 children aged under 14 are diagnosed with cancer and 3% of them have retinoblastoma which is what's detected by 'knowing the glow'. Now 1771 people know how to spot the signs which lead to rapid diagnosis and a good prognosis.

12) This wish shot over my 30 meals aim with someone donating 64 meals to one food bank,
40 breakfasts for UK children, 100 meals for children through Oxfam and many others donates to foodbanks too. Often I heard from the foodbanks direct rather than from those who were donating so I wasn't able to thank them direct.

13) Thank you to everyone who donates a copy of Severe M.E guide to living. I had 32 copies donated in the end and I know they will help all 32 people a HUGE amount and in turn help their family/carers.

14) I'm proud to know so many blood donors! I received a lovely email from someone who said she used to donate blood but just hasn't gotten around to doing it for a very long time and after reading my blog she went and booked herself in to donate.

15) I don't know the exact number but quite a few people have said they are working on making Twiddlemuffs and others have promised to make some I Spy Bags in the New Year.

16) I'm so close to reaching the goal of 1000 people reading the guide, I'm currently up to 896!

17) This might be one of my favourite wish outcomes, some readers have had to reach for the tissues. You can read about the wish here but here is a preview photograph


18) My wish was for people to help Dottie help more seriously ill Post Pals children next year by purchasing Christmas cards or a calendar. The wish grew bigger than I had hoped with someone sponsoring the Dottie project for 2 families for the whole of 2015, 2 more 'littermates' (the dogs the children are sent) were donated and Dottie is currently at the Cabinet Office having adventures to tell the children about next year. As well as this people ordered some cards and calendars. Thank you on behalf of all the Post Pals children

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19) This one is the disappointing wish, I have a place in the marathon (and paid my entry fee) but they aren't letting someone be my legs! Someone asked if I could be pushed but I'm not well enough. I will keep trying to find someone at the marathon who could help. Huge thanks to those who have been helping try to change their mind!

20) I've had some kind offers from knitters to help and will be in touch over the next few weeks to match you with a bedbound person, sorry I've not been able to do this sooner.

21) 400 people read my blog post and I hope it comes back to them when they are next sending invitations to events. Even if just one special needs child is included then that's a great outcome for My 30 Wishes

22) thank you to everyone who has donated items to Burrswood, Alison the OT said it felt like Christmas came early! There's still some items on the list which haven't been ordered including a £7 magnifying glass, £2 ribbon for making special boxes, £29 mirror therapy box and mosaic coaster kits. You can see the wish list here. A big thank you to everyone who ordered something off the list.

23) unfortunately I missed listening to this one but again BBC Surrey granted my wish and took someone out who couldn't of gone out otherwise. Hopefully they had a lovely time. Although I didn't hear it, it's still one of my favourite wishes granted,

24) A few people got a carbon monoxide alarm after reading my wish and another couple checked the batteries in theirs. I only reached my 30th birthday because we had an alarm, if you don't have one and want to see another birthday then please get one! They are often only £10. I've seen recommendations to take them on holiday with you which is a good idea.

25) The wish list didn't trend on Twitter like I had hoped but it was the wish that was of least importance to me, it was just a way for people to see the other wishes.

26) I'm hoping at least one person has joined up to use their computer to help cure many serious conditions.

27) Medications were donated and awareness of schemes that recycle them raised so a big tick by this wish!

28) I set a target of 30 bubble wands and in the end 30 bubble wands were sent plus around another 20 gifts! That's 50 happy children who otherwise wouldn't of had a gift at Christmas. Thank you everyone.

29) Lots of people gave decorations in honour of this wish (and often handmade) which I was amazed about considering how late I added the wish to my blog.

30) I've really enjoyed reading about people grasping life and doing something they have always wanted to. In the words of Alice Pyne ONE LIFE, LIVE IT.

A beautiful record of wishes

This turned up after Christmas (thanks to Royal Mail) but having it late was nice as I was very unwell and read a page every few hours as distraction and something to look forward to.

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This was from Kim and full of details of the wishes she granted.

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Giving flowers and balloons

Kim runs a card shop and gave out flowers and a balloon to customers who seemed in need of a smile, an elderly lady burst into tears as she had never been given flowers before (not even from her husband). She also made keyrings with bells on to give to elderly customers with instructions to put them on their purse to help prevent being a victim of pickpockets

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Wish granting on a big scale!

The night before my birthday I opened this amazing book, was completely blown away by it. The sender (I've cut her name and picture out so it's not searchable as I don't have permission to post her name) with details of the many many wishes she granted. It finished with a letter which I will be rereading on bad days when running a charity feels very hard.

The book;
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She sent lots of post and this is Lew (a Post Pals child) with his

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The letter at the end
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You need to know we've never met but from your bed you have changed my life. In 2008 my life changed quite rapidly after getting a blood clot, from then my health has been on a rapid downward spiral, I had to stop working, stop driving, I was unable to take part in my hobbies as well as feeling ill, I felt pretty useless. I have no diagnosis and am not likely to get one.

I read a small article in a a magazine about a young man who was poorly himself but spent time writing to other poorly children through post pals. MY WORLD CHANGED, WHOO I HAD A PURPOSE. I could help people, it has made such a difference. I can't write but I can type a bit. I also use speech to text which helps. When I couldn't find appropriate cards, I found a hallmark cards CDROM which allowed me to make cards. It gave me contact with children which I really missed, my job before was a teaching assistant in a primary school. Because Post Pals supports children who have mo diagnosis I realised I was not the only one without a diagnosis.

I find it difficult to wrap my parcels so invite friends for dinner and then get them to wrap my parcels (it's voluntary honestly)" at half term one of my friends came and wrapped up 48 parcels for my advent calendars, we had lots of fun and laughter, thanks to Post Pals.

Since I have been posting my local post office has installed wheelchair access, which I don't think is a coincidence and will benefit other people as well. You and all the Post Pals volunteers made my life a happy place again, which in turn has helped my family.

Hoping and praying the next 30 are happier and healthier.

Sunday, 28 December 2014

Tuesday, 23 December 2014

Wish 29 in Portugal

I love how the Internet is international (might not be saying that if I lived in North Korea!), here is wish 29 I'm Portugal;

Hey Vikki,

Last night I emailed to let you know how I had got on with fulfilling some of your birthday wishes. Well this evening my kids had fun completing wish 29, giving someone a Christmas decoration.

We chose the older lady who runs our local bar / shop because she is really sweet and awfully nice too us. The bar really is the centre of our very small community. We chose two beaded ornaments, a sstar and a Santa figure. The kids wrapped them up and we gave them to her in a quiet moment this evening.

She cried, which we really weren't expecting! But I think they were nice tears :)

With love,
Andrea

Monday, 22 December 2014

Post from number 10

My birthday post from Downing Street :)

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And a blurry screenshot of the tweet

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Sunday, 21 December 2014

The Wishes

This is my 30 before 30 list
But here comes the twist,
Because of my illness and disability
You will have to do it for me,
See I have these plans in my head
But I'm stuck 24/7 in a hospital bed!

Please help tick things off my 30 before 30 list that I'm too unwell to do myself. My 30th birthday is on 21/12/2014 and will be my 13th birthday stuck in bed with severe M.E

Wish 1- Join the bone marrow register
Wish 2- 300,000 views on this video
Wish 3- Fundraise and purchase a beach wheelchair for visitors to Norfolk
Wish 4- Send 30 pieces of snail mail
Wish 5- Give a balloon or flower to someone
Wish 6- Do a RAOK
Wish 7- Watch Voice's from the shadows
Wish 8- Donate time or an activity to a nursing home/hospital/day centre
Wish 9- Watch an sunset or sunrise
Wish 10- Download Spread The Hope charity single
Wish 11- Know The Glow and save a childs life
Wish 12- Donate items to a food bank or pay for a childs lunch
Wish 13- Copy of Severe M.E Guide to Living - COMPLETE
Wish 14- Donate blood/blood products
Wish 15- Make/sew an I Spy Bag or Twiddle Muff
Wish 16- Read this guide to supporting parents who have lost a child
Wish 17- The gift of music COMPLETE
Wish 18- Helping Dottie
Wish 19- Run the London Marathon
Wish 20-Make/sew/knit/crochet a blanket for someone who is bedbound
Wish 21- Invite someone with special needs to a party
Wish 22- Donate small items to a non profit hospital
Wish 23- Take someone out who couldn't otherwise go
Wish 24- Get a Carbon Monoxide alarm NEW
Wish 25- Have my list trend on Twitter #my30wishes
Wish 26- Use your computer space to help find a cure for many conditions
Wish 27- Donate unused medication and medical supplies
Wish 28- Buy a £2.99 bubble wand for a child who won't get any presents COMPLETE
Wish 29- Give a decoration to someone
Wish 30- Do something you always wanted to do




I would love to hear or see pictures if you take part with any of my wishes and will read them on my birthday (21/12). My contact details are my30wishes@hotmail.com and Vikki C/O Post Pals, PO Box 278, Leatherhead, Surrey, KT23 4WN, England. Thank you